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Why Are Young Australians with Disability Still Living in Nursing Homes?

In 2024, Australia still faces a quiet crisis. Young people with disability some in their 20s and 30s are living in aged care facilities built for end-of-life support, not for pursuing study, work, friendship, and independence. Despite years of reform, the question remains: why is this still happening?

A Promise Broken: The Numbers Behind the Story

The government’s Younger People in Residential Aged Care (YPIRAC) Strategy 2020–2025 committed to ending placements of people under 65 in aged care by 2025, except in truly exceptional circumstances. Yet as of 30 September 2024, 1,161 people under 65 were still living in aged care. That’s a steep drop from earlier years advocates once counted many thousands but it’s far from the promised zero. Disability leaders call it a “national shame” because every remaining case represents a life on hold.
Behind these numbers are everyday stories: a hospital discharge with nowhere accessible to go; a participant approved for housing funding that hasn’t landed; a young person “temporarily” placed in a nursing home who stays there for years.

How Did We Get Here?

This problem sits at the crossroads of health, housing, and disability support. Hospitals discharge because beds are needed. Community housing can’t offer accessible options fast enough. NDIS approvals can lag behind real-world timelines. Too often, aged care becomes the “only door that’s open” not because it’s right, but because it’s available.

The NDIS: Lifeline and Labyrinth

The NDIS created new pathways Specialist Disability Accommodation (SDA) for the “bricks and mortar,” Supported Independent Living (SIL) for the support team, and Individualised Living Options (ILO) for flexible living arrangements. When these align, lives change: modern homes with assistive tech, wide corridors, emergency back-ups, and staff supports tuned to the person.
But misalignment is common. Some people are approved for SDA but not the SIL they need to actually live there an administrative catch-22. Others wait months for evidence gathering and decisions. Providers face their own hurdles: complex registration, design categories, and uncertain demand forecasts that make investment risky.

The Supply Gap

Even with funding, supply is thin. High Physical Support and Robust SDA homes are unevenly distributed, concentrated in metro areas and scarce in regional towns. Families are forced to choose between a distant suitable home or local aged care that isn’t suitable at all.

The Human Cost of Institutionalisation

A nursing home shapes identity as much as it provides a bed. Imagine being 30 and surrounded mostly by people in their 80s and 90s. Activities, routines, even the pace of care aren’t designed for rehabilitation, friendship, or career goals. Research and lived experience point to loneliness, depression, and loss of independence not because staff don’t care, but because the model isn’t built for young lives to grow.

Policy Tension: The New Aged Care Act Loophole

The new Aged Care Act is intended to limit access to government-funded aged care for people under 65. That’s good in principle close the “easy door” that keeps drawing young people into aged care. But there’s a loophole: it permits entry for Aboriginal and Torres Strait Islander people aged 50+ and for people 50+ who are homeless or at risk. These provisions reflect real needs but advocates warn they may undermine decades of bipartisan work by normalising younger placements again. If the system doesn’t simultaneously guarantee accessible housing and disability supports, a “limited access” rule risks becoming an old pathway with new signage.

Beyond Bricks: What ‘Home’ Must Mean

Ending younger people in aged care is more than building units; it’s about designing home:

  • Universal Design in mainstream housing so basic accessibility is a default, not a luxury.
  • Smooth transitions from hospital to home with proactive coordination between hospitals, NDIS planners, and housing providers.
  • Local choice so people aren’t pushed far from community, culture, Country, or family just to get a ramp and a roll-in shower.

What’s Working and Needs Scaling

Partnerships between SDA developers, community housing providers, and quality support organisations are delivering high-support, tech-enabled homes where people regain control: cooking in accessible kitchens, hosting family, setting their own routines. These are proof-of-possibility projects. To move from pilots to normal practice, we need faster decisions, predictable rules, and targeted incentives to build in regions where the gap is widest.

The Road Ahead

Targets matter but delivery matters more. Hitting “zero” won’t happen by declaration. It takes:

  • Time-bound NDIS decisions for SDA/SIL with coordinated hospital discharge plans.
  • Supply targets tied to real demand data, including regional minimums.
  • Guardrails in the Aged Care Act so exemptions don’t quietly re-open institutional pathways.
  • Lived-experience leadership fund, listen to, and co-design with people who have been in aged care.
    Conclusion
    Young Australians with disability deserve more than a bed; they deserve a home and a life. We’ve reduced the numbers, but until no one is left in aged care because the system failed them, our work isn’t done.
    Call to Action:
    Back organisations pushing for SDA reform and regional builds. If you work in health or the NDIS, push for discharge-to-home pathways. If you’re in government or housing, fund universal design at scale. Share this post—and help close the last mile between a target and a life lived at home.

More Than Ramps: Unpacking the Real Barriers for People with Disability in Australia.

When we think about barriers for people with disability, the first image that comes to mind is usually a flight of stairs without a ramp. But the real barriers in Australia run much deeper.
In 2024, approximately 5.5 million Australians, or 21.4% of the population, are reported to have a disability up from 17.7% in 2018. Among them, 21.8% are females and 21.0% are males. More than half (52.3%) of people aged 65 and over live with a disability, showing the strong link between ageing and disability. Around 1.46 million people need help with daily activities such as mobility, communication, or self-care.
The majority about 75% report physical disorders as their main condition, while 4.1% experience profound limitations in core activities. People with disability are also more likely to report poor general and mental health compared to those without disability.
These numbers tell a clear story: disability isn’t rare or “other.” It’s part of the human experience. Yet, many Australians still face barriers that limit access, participation, and equality in daily life.

The Physical & Environmental Barrier: “Can I Even Get In?”

This is the most visible barrier, but it goes far beyond ramps.
Public Transport: Accessibility remains inconsistent across Australia. Not every train or bus route is accessible, and when lifts break or stations lack ramps, travel plans fall apart. For many, it means missing appointments, work, or social events.
Public Spaces: Parks without accessible toilets, beaches without matting, or shops with narrow aisles quietly exclude people from ordinary life. These design flaws tell people with disability they weren’t part of the plan.
The Housing Crisis: For many, the biggest barrier is at home. Accessible housing is scarce, and renters are often told “no modifications allowed.”

The Home Accessibility Crisis:
Small features others overlook door widths, steps, bathroom design can make a home unsafe or unlivable. The NDIS can fund modifications, but the process is slow and stressful.

The Australian Context: The Disability Discrimination Act 1992 (DDA) was a milestone, yet much of our housing stock predates accessibility standards. Compliance remains patchy, making access a matter of luck and postcode.

The Attitudinal Barrier: “The Invisible Wall”

This barrier is harder to see, but it cuts the deepest.
Pity and Infantilisation: People with disability are too often treated as helpless or inspirational simply for living their lives.
Assumption of Inability: Employers still hesitate to hire, assuming costs or inconvenience. Instead of asking “what do you need?” they quietly say no.
Stigma and Stereotyping: Invisible disabilities autism, chronic illness, PTSD often trigger disbelief or judgement. These attitudes push people out long before a door does.
Attitudes like these create invisible walls that keep people from being seen as equals. They’re not built from bricks, but from bias.

The Systemic & Economic Barrier: “Navigating the Maze”

Even well-intentioned systems can become obstacles.
The NDIS Maze: The National Disability Insurance Scheme is vital but complex. Planning meetings, reports, and appeals can feel like a full-time job. For many families, managing supports is a constant balancing act.
The Poverty Trap: People with disability are overrepresented among low-income Australians. The Disability Support Pension is hard to access and often falls short of meeting actual costs like equipment, transport, or therapy the “disability price tag.”
Employment Discrimination: Despite strong anti-discrimination laws, many workplaces still aren’t ready or willing to employ people with disability. This keeps thousands out of work and dependent on inadequate income support.

The Digital and Social Barrier: “Locked Out of the Virtual and Real World”

As the world moves online, new walls appear.
Digital Exclusion: Websites, forms, and apps often ignore accessibility basics missing captions, poor colour contrast, or incompatibility with screen readers. For some, that’s the same as locking the front door.
Social Isolation: When venues are inaccessible or communication isn’t inclusive, people with disability get left out socially, emotionally, and economically. Isolation isn’t about personality; it’s about design.

Breaking Down the Barriers: A Collective Responsibility

None of these barriers are fixed. They’re the result of human choices and they can be changed by human will.
As a Community: Listen. Learn. Use inclusive language. Challenge ableism wherever you find it. Inclusion starts small, with everyday respect.
As Businesses and Employers: Audit buildings, websites, and policies. Accessibility isn’t an optional add-on it’s part of good design. Hiring inclusively isn’t charity; it’s smart, sustainable practice.
As a Society: Strengthen the DDA, fund more accessible housing, and simplify the NDIS process. Support organisations like People with Disability Australia (PWDA) that centre lived experience in every decision.

Conclusion
The 2024 statistics tell us one thing clearly: disability is a major part of our national story. But inclusion is still a work in progress. The barriers that exclude millions of Australians aren’t inevitable they’re man-made, and that means they can be unmade.
Accessibility is about more than ramps or regulations; it’s about belonging, safety, and equal opportunity. When we design better homes, shift attitudes, and fix broken systems, we move closer to an Australia that truly works for everyone.

Call to Action:
What barrier will you help dismantle today? Share this post to raise awareness, start a conversation at work, or check your own environment for accessibility. Real change begins when awareness turns into action.